List of publications related to the COST Action
Notable scientific publications of the CostCares members:
Fors, A., Blanck, E., Ali, L., Ekberg-Jansson, A., Fu, M., Kjellberg, I. L., ... & Ekman, I. (2018). Effects of a person-centred telephone-support in patients with chronic obstructive pulmonary disease and/or chronic heart failure–A randomized controlled trial. PloS one, 13(8), e0203031.
Moore, L., Britten, N., Lydahl, D., Naldemirci, Ö., Elam, M., & Wolf, A. (2017). Barriers and facilitators to the implementation of person‐centred care in different healthcare contexts. Scandinavian journal of caring sciences, 31(4), 662-673.
To empower patients and improve the quality of care, policy‐makers increasingly adopt systems to enhance person‐centred care. Although models of person‐centredness and patient‐centredness vary, respecting the needs and preferences of individuals receiving care is paramount. In Sweden, as in other countries, healthcare providers seek to improve person‐centred principles and address gaps in practice. Consequently, researchers at the University of Gothenburg Centre for Person‐Centred Care are currently delivering person‐centred interventions employing a framework that incorporates three routines. These include eliciting the patient’s narrative, agreeing a partnership with shared goals between patient and professional, and safeguarding this through documentation.
To explore the barriers and facilitators to the delivery of person‐centred care interventions, in different contexts.
Qualitative interviews were conducted with a purposeful sample of 18 researchers from seven research studies across contrasting healthcare settings. Interviews were transcribed, translated and thematically analysed, adopting some basic features of grounded theory.
The ethical code of conduct was followed and conformed to the ethical guidelines adopted by the Swedish Research Council.
Barriers to the implementation of person‐centred care covered three themes: traditional practices and structures; sceptical, stereotypical attitudes from professionals; and factors related to the development of person‐centred interventions. Facilitators included organisational factors, leadership and training and an enabling attitude and approach by professionals. Trained project managers, patients taking an active role in research and adaptive strategies by researchers all helped person‐centred care delivery.
At the University of Gothenburg, a model of person‐centred care is being initiated and integrated into practice through research. Knowledgeable, well‐trained professionals facilitate the routines of narrative elicitation and partnership. Strong leadership and adaptive strategies are important for overcoming existing practices, routines and methods of documentation. This study provides guidance for practitioners when delivering and adapting person‐centred care in different contexts.
N Britten, L Moore, D Lydahl, O Naldemirci, M Elam, A Wolf (2016). Elaboration of the Gothenburg model of person-centred care. Health Expectations; doi:10.1111/hex.12468
Person-centred care (PCC) is increasingly advocated as a new way of delivering health care, but there is little evidence that it is widely practised. The University of Gothenburg Centre for Person-Centred Care (GPCC) was set up in 2010 to develop and implement person-centred care in clinical practice on the basis of three routines. These routines are based on eliciting the patient’s narrative to initiate a partnership; working the partnership to achieve commonly agreed
goals; and using documentation to safeguard the partnership and record the person’s narrative and shared goals.
In this paper, we aimed to explore professionals’ understanding of PCC routines as they implement the GPCC model in a
range of different settings.
We conducted a qualitative study and interviewed 18 clinician-researchers from five health-care professions who were working in seven diverse GPCC projects.
Interviewees’ accounts of PCC emphasized the ways in which persons are seen as different from patients; the variable emphasis placed on the person’s goals; and the role of the person’s own resources in building partnerships.
This study illustrates what is needed for health-care professionals to implement PCC in everyday practice: the recognition of the person is as important as the specific practical routines. Interviewees described the need to change the clinical mindset and to develop the ways of integrating people’s narratives with clinical practice.
full text available.
Close, J et al. Lloyd, H et al. (2019) An Alternative to the Quality Outcomes Framework and its Role in the Management of People with Multiple Long Term Conditions: T he Results of a System Wide Longitudinal Evaluation. Submitting to BMJ Open. BMJ Open, 2019; 9: e029721. doi:10.1136/bmjopen-2019-029721
Wheat, H., Close, J., Horrell, J., Valderas, J., and Lloyd, H. (2018). How practitioners use patient reported measures (PRMs) to enhance person centred coordinated care (P3C): A qualitative study. Qualitative Health Research. 2018; 16: 223.Published online 2018 Dec 4. doi: 10.1186/s12955-018-1045-1
Lloyd, H., et al (2018). The Psychometric Development of the P3C-EQ. International Journal for Quality in Healthcare. International Journal for Quality in Health Care, mzy212, https://doi.org/10.1093/intqhc/mzy212
Close, J., Byng, R., Valderas, J., Britten, N., and Lloyd, H. (2018). Quality after the Quality Outcomes Framework (QOF)? British Journal of General Practice. Invited Editorial. Br J Gen Pract 2018; 68 (672): 314-315. DOI: https://doi.org/10.3399/bjgp18X697589
Lloyd, H., et al (2018). Patient-Reported Measures for Person-Centred Coordinated Care: A Comparative Domain Map and Web-Based Compendium for Supporting Policy Develo pment and Implementation. Journal of Medical Internet Research (JMIR). 14.02.18 in Vol 20, No 2 (2018): February.
Sugavanam, P., Close, J., Fosh, B., Byng, R., and Lloyd, H (2018). Co-designing a Measure of Person Centred and Coordinated Care to Capture the Experience of the Pati ent: The Development of P3CEQ. Journal of Patient Experience.
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